NENC ICB are aiming to improve the help and support available for people with or without an ADHD/Autism diagnosis across the North East and North Cumbria and we are working with our key partner organisations to improve the NHS diagnosis pathways.
We have four key areas of work, focusing on:
- NHS waiting times for ADHD and Autism diagnostic assessment
- NHS Right to Choose
- ADHD medication and shared care
- Access to help and support when needed (needs-led support)
How to raise a query or concern
Our dedicated web page provides detailed information and answers to common questions about our ADHD and Autism pathways.
The web page offers advice on diagnostic assessment waiting times, getting support without a diagnosis, Right to Choose providers, shared care agreements and ADHD prescriptions. It also provides further resources and information about ADHD and Autism as well as NHS help and support locally.
Complaints regarding ADHD information
If you wish to raise a complaint about a service you have received, in the first instance you should follow the services own complaints procedure.
It is important to note:
Raising a complaint with NHS North East and North Cumbria ICB (either directly or via your MP) WILL NOT
- Reduce your (or someone you represent) wait time for a diagnostic assessment with any NHS provider including all Right to Choose providers
- Reduce your (or someone you represent) wait time for titration of ADHD medication with any NHS provider including all Right to Choose providers
- Enable you (or someone you represent) to access ongoing ADHD medication via the NHS is you have privately funded an assessment and started treatment
- Enforce a GP to enter into a shared care agreement
We recognise wait times are long and we are working hard, and investing in services, to reduce these.
We recognise shared care can be an issue for some people, and in most cases this is not needed for ongoing NHS prescribing – if you receive medication from a specialist provider under the NHS, then ongoing prescribing responsibility remains with them.
If the nature of your complaint or query relates to information already available on the dedicated web page, the complaints team will not provide a personalised response but will direct you to the information available on the web page.
If you (or someone you represent) has had a change in circumstance you should communicate this with the specialist provider you are registered with, or your GP.
If you (or someone you represent) needs support while you wait for an assessment or ADHD treatment within the wait times you have been advised of, please contact your GP, call 111 or access support locally. There is information available on our webpages below about support local to you.