Tees Valley

Palliative and end of life support

The Children's Care Co-ordinator will support you and your family from the point of diagnosis by signposting and navigating you through the health, social care, and education system to ensure you get the right support and advice at the right time.  The co-ordinator will work in partnership with your family, providers, local authorities, and the voluntary sector, to ensure that the needs of your child are met, and your voices are heard. This support will be as personal and flexible as possible and provide you with a point of contact to support you through this journey.

The co-ordinator will utilise the personalised care approaches and support any transitions of young people to adulthood.

Please contact Children's Care Co-ordinator (Life Limiting Conditions). Email: necsu.cypcarecoordination@nhs.net

The following charities can offer support to children, young people and their families. 

CHIPS is a specialist service designed to provide expert palliative care support for babies, children and young people with serious and life-threatening conditions and their families.  The services works alongside other clinical teams that are caring for them.

CHIPS is a regional service working across North East and North Cumbria and their roles include, general advice and support for clinical teams, children young people and their families, introduction palliative care at the point of diagnosis or another point in their illness, support with planning and managing complex symptoms, co-ordinating end of life care whether that is at home, hospice or at hospital, bereavement support and signposting and teaching and training teams and individuals.

For more information and how to access please follow: CHIPS - Newcastle Hospitals NHS Foundation Trust (newcastle-hospitals.nhs.uk)

Hospices offer a very warm welcome to babies, children, young people and their families.

The Home and Hospital Service provides education for children out of school or in hospital due to a health need.  This service is offered to children of statutory school age and unable to attend school due to their physical health and provides education to help prevent them from slipping behind in their schoolwork.

Teaching sessions are offered at a location near to your home or if necessary, in your home. Staff will work closely with children to ensure they follow the right programmes of study and support integration back into school as soon as possible following advice from a medical professional.

For further information please contact the education department within your local authority or the SENCO within school.

Carer support services provide a range of different services to help support adults, children, young people, and their families who are in a caring role. Please follow the information below and click on the areas where you live to find more information about carers support.

Darlington:
Stockton:
Hartlepool:
South Tees:

Parent Carer Forums work in partnership with Health, Education and Social Care to ensure that the voices of parents and carers of children and young people are heard. The parent carer forums will also offer support, advice, and guidance to families with Children and Young People with Special Educational Needs and Disabilities (SEND).

To access your local parent carer forum please visit:

To access the regional parent carer forum information please visit here.

local information, advice and support about education, health & social care. Each Local Authority have a local offer.  On your local offer you will find information relating to Early Help, Portage and Short Breaks as well as other information that might be useful to you.

Please take time to look through these pages for advice, guidance, and support for your family.

Some families of children and young people with a life limiting condition have asked about potential organ/tissue donation following the death of their child. If you would like to find out more please visit Home - NHS Organ Donation

The following organisations provide accessible activities for babies, children and young people living with a life limiting condition or complex needs.

Senses Wellbeing Centre provides accessible, achievable and affordable sessions for everyone in a safe space. The centre is based in the Redcar and Cleveland area and is open Monday to Sunday from 9am - 8pm. For further information please visit Senses Wellbeing Centre.

The Wheelyboat Trust provides disabled people with freedom and independence on the water. Wheelyboats are a registered charity dedicated to providing mobility, learning and sensory impaired people of all ages with independent access to activities such as powerboating, nature watching, pleasure boating and angling in our uniquely designed wheelchair-accessible Wheelyboats. For further information please visit Wheelyboat Trust.

Finding travel insurance for children and young people with medical conditions can be very difficult. If you are concerned about whether travel insurance will be able to cover your child or young persons condition, the following may be able to help you - Insurance and Go.