How we are working with the public
We have a firm commitment to public and patient involvement in the Secure Data Environment. We are actively listening and engaging with the people of the North East and North Cumbria.
Our approach is to:
- Find the key topics and areas we need public feedback on
- Work with public members who advise and guide our work
- Share and learn from other regions
- Work with the national team using our insights and knowledge
We have 20 public members who guide and advise the programme team. They:
- Decide whether projects looking to access the Secure Data Environment are in the public interest
- Take part in meetings where key programme decisions are made
- Have produced all of our patient leaflets and posters
Meet Chris and Susan.
Our research
We regularly involve and speak to members of the public in our region about use of the health and care records in the Secure Data Environment.
Carrying out this research, listening and understanding the public is vital. Here are some of our findings:
- Impact assessment
- Street survey one
- Street survey two
- Public views on health data sharing - Focus Group 2025
Where can I find out more?
Understanding Patient Data has a range of resources and materials which explain how health and care information is used in different ways.
