Opt out

Can I opt out of the North East and North Cumbria Secure Data Environment?

Health and care records are already used to support research, planning and evaluating health and care services. People do not have to give permission for their health and care. When health and care information is made available for research, information which could identify you is removed.

You can see which projects have access to the North East and North Cumbria Secure Data Environment.

To opt out of the North East and North Cumbria Secure Data Environment, you can contact us by email, telephone or post.

You need to provide us with the following details so we can remove you:

• NHS Number (if known)
• Full name
• Date of birth
• Gender at birth
• Address
• Telephone number (optional)

Email: necsu.sdeoptout@nhs.net
Phone: 0191 916 9353 (available Monday to Friday, 9am to 5pm)
Post:

Governance Team
North East and North Cumbria Integrated Care Board
Pemberton House
Colima Avenue
Sunderland Enterprise Park
Sunderland
SR5 3XB

National Data Opt-Out

The National Data Opt-Out allows people to opt out of their confidential patient information being used for research and planning. Where the National Data Opt-Out applies, it will be respected.

The National Data Opt Out does not apply to data which has already had your personal data removed and a new disguise code (known as psdeudonymisation) applied. 

Find out more about how your data is used in our Secure Data Environment privacy statement.