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Data users of the Secure Data Environment

Current status

The North East and North Cumbria Secure Data Environment is currently under development, with a technical platform already in place. The governance structure that will support the programme is being developed and is expected to be operational by the end of December 2024.

We are also developing our data request and enquiry processes and will be moving towards a more structured approach in the future.

Several test projects are currently using the Secure Data Environment platform to access and use data. Until the regional governance is fully established, data requests and approvals will be managed on a case-by-case basis.

For projects interested in using the Secure Data Environment, email the team at: nencicb.sde@nhs.net to discuss costs and feasibility.

 

National Secure Data Environment Network

We are one of 11 Secure Data Environments around the country. Each of the regional Secure Data Environments are at different levels of maturity in terms of the data and services that are available. Find out more the national Secure Data Environments network.

 

Test projects

Our Secure Data Environment programme is currently testing some initial projects. These include the Newcastle University Patient Safety Research Collaboration which is carrying out several projects with the Secure Data Environment.

  • One is mapping data to understand more about the care needs of older people who have recently been in hospital
  • Whether patients in deprived communities are less likely to receive innovative cancer treatments such as immunotherapy.
  • They are developing an artificial intelligence (AI) system to identify high risk glaucoma patients to ensure they are followed up and scheduled appropriately.
  • One project is assessing whether using digital photography and AI can improve waiting times for skin cancer patients.
  • One study is looking to find out the impact on patients when they are on five or more medications

A separate research collaborative is also using data in the Secure Data Environment and artificial intelligence to identify people at risk of having more than one long term health condition. It is linking the healthcare data with other sources to understand the wider picture.

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